Saturday, 15 October 2016

Raising Awareness Of Dysmotility | October Guest Post Month

Hello lovelies, I hope you're all well! 
Back in 2013, I fell severely ill with multiple chronic illnesses. It all happened so quickly, and took over my body like a storm. One minute I was a healthy 14 year old girl, and the next, I was stuck in a hospital bed, unable to move. It's hard, but the one thing I can thank my illnesses for is making me a much stronger, more positive person. 
Today, I want to raise awareness for one of my illnesses, which is an rare gastrointestinal disease called Dysmotility. Dysmotility took over my digestive system back in 2013. It spread very quickly, and resulted in complete digestive paralysis by December 2014. Two years later, I'm in complete digestive tract paralysis, and my body is continuing to shut down as time goes on. 

So, for starters, what is Dysmotility? 
Dysmotility is a condition in which muscles of the digestive system become impaired, and changes in the speed, strength, or coordination in the digestive organs occurs. Functional gastrointestinal, and motility disorders are life-long (chronic) digestive conditions about which little is understood, and few (if any) treatment options exist. Motility is defined by the movements of the digestive system, and the transit of the contents within it. Problems occur when nerves, or muscles in any portion of the digestive tract do not function with their normal strength and coordination. 
There are many causes of abnormal intestinal motility that can be separated into two different groups:
  • abnormalities of the muscle of the intestine (myopathy) 
  • abnormalities in the neural (nerve) control of the muscle (neuropathy)
What organs does Dysmotility attack? 
  • Oesophagus
  • Stomach
  • Small Intestine
  • Large Intestine (Colon)
  • Bladder
  • Rectum
In my case, Dysmotility has affected every organ of my digestive system, and paralysed them completely, causing multiple symptoms. Each organ affected is affected differently. Some may be partly affected, whilst other organs are completely paralysed. Not one persons case is the same, but each organ affected is life threatening, and complications can arise at any living point.
What are the symptoms of Dysmotility? 
There are hundreds of symptoms when it comes to Dysmotility, each case being completely different. Some unfortunately suffer from a few of these symptoms, or some people, like myself, are fighting every symptom on this small list, as well as more. Each symptom is severely debilitating to each person fighting this illness, and some can cause life threatening complications. Some of the symptoms include: 
  • Feeling Full After A Few Bites Of Food
  • Severe Nausea
  • Severe Continuous Vomiting
  • Chronic Abdominal Pain
  • Hiccupping
  • Excessive Belching
  • Severe Bloating
  • Weight Loss/Gain
  • Loss Of Appetite
  • Malnutrition
  • Severe Dehydration
Unfortunately, most cases of Dysmotility cannot be cured, and treatment options are limited. The treatment options which are available are intense, come with multiple complications, and are incredibly painful, but unfortunately most treatments don't work, so the only options doctors have is to try their hardest to treat some of the symptoms. When Dysmotility paralyses the intestines, sometimes surgery is an option. Removing the intestines segment by segment, or fully removing them, and fitting a colostomy bag is the route doctors go down depending on the situation. Often the outcome is unknown as to whether the surgery will work, but there's a chance it could have a positive impact on the persons life. 
Dysmotility is harsh, painful, tiring, frightening, and honestly physically, mentally, and emotionally draining. Raising awareness is a huge part of my life. Dysmotility is ruining the lives of many people world wide, and honestly awareness is key. 
Please help me raise awareness for this dreaded illness! 
Thank you all so much for reading my post, and a massive thank you to Jade for allowing me to write this post for her amazing blog. 
Sending you all tons of love, 

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